fig2

Burden of cerebral adrenoleukodystrophy on affected children and their families through the eyes of family caregivers

Figure 2. Chronology of the diagnostic process according to the parents of children with cerebral adrenoleukodystrophy. The age “at first signs” is the child’s age when, with hindsight, the caregiver saw the appearance of the very first signs of the disease. The age “at worrying signs” is the child’s age when the signs leading to a diagnosis appeared or when a brother was diagnosed in the absence of prior signs. n represents the number of children taken into account for each calculation.

Rare Disease and Orphan Drugs Journal
ISSN 2771-2893 (Online)
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